We had such a special day on Saturday...Rylie was baptized!! She looked so beautiful in white and she was glowing with excitement. It's hard to express my feelings as we prepared for this day...a little bit of anxiety, excitement, and most of all pure happiness!
To explain this a little more, let me go back about 5 years ago....
March 15th, the day before Rylie's 3rd birthday. The day had seemed pretty routine; respiratory treatment, bath, got dressed, and played with toys. As the day went on Rylie began to cough and show signs of respiratory problems. By 2:00 pm she had spiked a high fever and began struggling to breath. I ran her into the clinic...she of course was admitted. I spent the afternoon/evening with her until around 10:00 pm or so. Erik was there to spend the night with her. She had continued to decline. I hadn't been home long when I get the phone call that most of us hope never to experience. All Erik said was..."GET HERE NOW"!!! He wouldn't tell me anything else!!! But he had a reason...he knew that if I really knew what was going on, I may not have driven in a safe manner. I parked the car and went running. As I reached the pediatric floor it was full of hospital personnel. My mind was going a hundred miles an hour "what's going on...where's my little girl"...
Rylie had coded not long after 11:00pm. Her heart and breathing had stopped and CPR was administered. Erik tells me how he woke up to the nurse saying CODE BLUE. He jumped out of bed to our sweet little girl laying so still in the bed, a pale white color, with no life in her. The code team worked on her for what seemed like forever....then all of a sudden the sound of beep beep beep from the heart monitor began. Yeah...that's a whole other feeling that I can't explain!!!! The life flight team from Primary Children's arrived and she was quickly rushed off. It was a touch and go situation for the next 7 hours or so. After arriving at Primary Children's, she still wasn't stable...could not get her blood pressure stable and the ventilator was doing all the breathing for her. This event led to a 2 month stay in the ICU and another code blue while there. I strongly believe she is watched over, protected, and comforted by a much higher power. I am so grateful for my knowledge of this and the comfort it gives me as well.
One night in particular (1 month into her ICU visit from events above), as I again was called just minutes after arriving home from a long day in the ICU with Rylie. The nurse says "Rylie's crashing, we've had to put her back on the ventilator". So off I went ...another frantic drive back to Primary children's. This time it was different...Rylie had been struggling to breath for over a month now...her little body was tired and needed help. She was on 100% oxygen and still dropping. Options were limited. Multiple doctors surrounded her bed trying and hoping for a miracle. At the same time her oxygen continued to drop. I again turned to my Heavenly Father...I knew my little girl was slipping away. Her little body had fought long and hard with physical limitations to begin with. I knew she needed his help. Within minutes after, one doctor came up with an idea to switch a setting on Rylie's ventilator. Her words were "This is old school, but it's worth a try". Sure enough...within an hour after Rylie was stable again and continued to progress everyday after that until she was finally able to come home!
Rylie spent her first 3 years of life in and out of the hospital fighting through situations like the events mentioned above. So for this wonderful event to happen on Saturday...let's just say, it's a milestone we didn't know we'd get to experience....but so grateful we did!!!
LOVE YOU BUGS!!! WE ARE SO PROUD OF YOU!!!

Rylie was baptized by her dad and uncle Mike

All of Rylie's wonderful friends came to share this special day with her. We sure love each and everyone of you and thank you for being apart of Rylie's life!!


Congradulations Rylie! You are such a special little girl and I am honored to be your mom!!!